Editorial

Implications of direct-to-consumer whole-exome sequencing in South Africa
Abstract
This editorial examines a number of vitally important ethical, legal and scientific concerns that have to be addressed to ensure proper and ethical implementation of direct-to-consumer whole-exome sequencing in South Africa. Individuals taking part in this endeavour must be fully informed of the positive and negative sequelae.
Authors' affiliations
Zané Lombard, Southern African Society for Human Genetics, Johannesburg, South Africa; Division of Human Genetics, School of Pathology, Faculty of Health Sciences, National Health Laboratory Service, University of the Witwatersrand, Johannesburg, South Africa
Fiona Baine, Southern African Society for Human Genetics, Johannesburg, South Africa; Division of Human Genetics, School of Pathology, Faculty of Health Sciences, National Health Laboratory Service, University of the Witwatersrand, Johannesburg, South Africa
Amanda Krause, Southern African Society for Human Genetics, Johannesburg, South Africa; Division of Human Genetics, School of Pathology, Faculty of Health Sciences, National Health Laboratory Service, University of the Witwatersrand, Johannesburg, South Africa
Anneline Lochan, Southern African Society for Human Genetics, Johannesburg, South Africa; Division of Human Genetics, School of Pathology, Faculty of Health Sciences, National Health Laboratory Service, University of the Witwatersrand, Johannesburg, South Africa
Shelley Macualay, Southern African Society for Human Genetics, Johannesburg, South Africa; Division of Human Genetics, School of Pathology, Faculty of Health Sciences, National Health Laboratory Service, University of the Witwatersrand, Johannesburg, South Africa
Careni Spencer, Southern African Society for Human Genetics, Johannesburg, South Africa; Division of Human Genetics, School of Pathology, Faculty of Health Sciences, National Health Laboratory Service, University of the Witwatersrand, Johannesburg, South Africa
Colleen Aldous, Southern African Society for Human Genetics, Johannesburg, South Africa; School of Clinical Medicine, Nelson Mandela School of Medicine, College of Health Sciences, University of KwaZulu-Natal, Durban, KwaZulu-Natal, South Africa
Jantina de Vries, Southern African Society for Human Genetics, Johannesburg, South Africa; Department of Medicine, Faculty of Health Sciences, University of Cape Town, South Africa
Karen Fieggen, Southern African Society for Human Genetics, Johannesburg, South Africa; Division of Human Genetics, Department of Clinical Laboratory Sciences, Faculty of Health Sciences, University of Cape Town, South Africa
Bertram Henderson, Southern African Society for Human Genetics, Johannesburg, South Africa; Division of Human Genetics, Faculty of Health Sciences, University of the Free State, Bloemfontein, South Africa
Eileen Hoal, Southern African Society for Human Genetics, Johannesburg, South Africa; DST/NRF Centre of Excellence for Biomedical Tuberculosis Research/MRC Centre for Molecular and Cellular Biology, Division of Molecular Biology and Human Genetics, Faculty of Medicine and Health Sciences, Stellenbosch University, Tygerberg, Cape Town, South Africa
Craig Kinnear, Southern African Society for Human Genetics, Johannesburg, South Africa; DST/NRF Centre of Excellence for Biomedical Tuberculosis Research/MRC Centre for Molecular and Cellular Biology, Division of Molecular Biology and Human Genetics, Faculty of Medicine and Health Sciences, Stellenbosch University, Tygerberg, Cape Town, South Africa
Noelene Kinsley, Southern African Society for Human Genetics, Johannesburg, South Africa; Genetic Counselling SA, South Africa
Alison September, Southern African Society for Human Genetics, Johannesburg, South Africa; Division of Exercise Science and Sports Medicine, Department of Human Biology, Faculty of Health Sciences, University of Cape Town, South Africa
Michael Urban, Southern African Society for Human Genetics, Johannesburg, South Africa; Division of Molecular Biology and Human Genetics, Faculty of Medicine and Health Sciences, Stellenbosch University, Tygerberg, Cape Town, South Africa
Himla Soodyall, Genetic Alliance South Africa, Johannesburg, South Africa; Division of Human Genetics, School of Pathology, Faculty of Health Sciences, National Health Laboratory Service, University of the Witwatersrand, Johannesburg, South Africa
Michael Pepper, Southern African Human Genome Programme, Pretoria, South Africa; Institute for Cellular and Molecular Medicine, Department of Immunology, Faculty of Health Sciences, University of Pretoria, South Africa
Michele Ramsay, Southern African Human Genome Programme, Pretoria, South Africa; Sydney Brenner Institute for Molecular Bioscience, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa
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Date published: 2016-01-12
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